Sorry I haven’t been blogging much lately. Something to do with my rising liver enzymes made hard for me to get the words in my head onto the page. It has improved quite a bit, no idea why. As Mike told you earlier I signed up with visiting nurses, or also called palliative care. These nurses are experts in things like pain management, home healthcare, and helping you get necessary equipment like canes, wheelchairs, etc. They do home visits, help figure out what you might need or want, and report back to your doctor. My visits will be one or two times a week.
I had an intro visit Sat so I could learn about the program and my first official visit with my Nurse Mary was today. She took my vitals and checked on (my now) significant swelling in my abdomen and feet. She explained possible treatments for my abdominal swelling using suction to remove it (done in the hospital). If it becomes a recurring issue, you can have a permanent tube so that you could remove the fluid at home.
The most useful part of the visit was the pain management. So far, the strongest pain med I’ve been given has been percocet. That might be because I have difficulty with uncontrolled vomiting with some meds. I feel like the percocet is not enough now. Mary suggested a patch called Fentanyl. I would start with the lowest dose and patch stays on for 3 days, slowly releasing medicine during that time. This sounds like it could be a huge help. I’m going to start anti nausea drugs at the same time so I get get ahead on that.