On Beyond Cancer

My life with metastatic breast cancer

Update May 31, 2014

Filed under: Uncategorized — onbeyondcancer @ 8:53 pm

I still have my lingering cough, but my other viral symptoms are gone.  Both boys caught the virus from me and were home from school most of the week.  It was quite an adventure.

I had a drs appointment on Wednesday.  I told Dr T about the symptoms I had this month including both shoulder pain (referred from the liver) and bone pain in my R hip.  We talked a bit about the future and I had a minor crying fit that took me completely by surprise.  My prognosis depends on my response to treatment and so far I have really only had a good response to Xeloda.  I told Dr T that I didn’t think the Afinitor was working either.  She said we’ll see what the tests say.

So on Thursday my blood tests were disappointing.  My white count was low (about half of normal), my liver function tests were abnormally high (5 times what they usually are), and my tumor marker was up 50 points to 185.  Ugh.  Dr T is at an oncology conference until Monday so I’ll talk with her next week.  In the meantime, I called the nurse practitioner to make sure my liver didn’t need urgent attention.  She suggested the abnormal tests were caused by Afinitor, but with the rising tumor marker and pain I’ve been having, I kind of doubt it.

I’ll post more info when I have it.  I’m OK, just frustrated.


8 Responses to “Update”

  1. Jennifer Gilbertson Says:

    We share your frustration, Karissa. Hang in there and think positive. You are doing all you can and I’m sure Dr. T is doing his best, too 🙂 =)

    We bought Ethan’s bday gifts today and we still think we can be at Mom and Dad’s between 5 and 6PM. Please save some cake for us to enjoy after we have dinner.

    Love, hugs & prayers,
    ~~Jennifer & Family

  2. Aunt Cindy Says:

    So sorry to hear this news. I would be more than frustrated! I will keep the prayers going, and sending you a big hug and kiss. I love you so much!

  3. Pam Says:

    Thanks for sharing, Karissa. So sorry the news is not more encouraging. Hang in there. My thoughts are with you. _Still_ miss you at work. I don’t get to laugh quite as much!!!

  4. I can imagine your frustration and I feel sorry for you. I hope your doctor brings back new inspiration from the (ASCO?) conference. Your side effects are serious, I hope they can be controlled. Wishing you all the best!

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