I had my monthly appointment with Dr T today. She got a copy of the genetic test results, so we reviewed them together. We are still waiting for the recommendations from the team of 10 or so oncologists from the Cancer Institute of New Jersey.
My only side effect from the Afinitor has been mouth sores. I typically have 1-3 at a time and each goes away on its own in about a week. When they get painful I use a numbing gel and avoid acidic foods like tomatoes and citrus fruits. Dr T said that since I am not having trouble eating we don’t need to reduce my dosage.
I got my Xgeva shot for my bones and also had blood work including a tumor marker. Since I’ve started Afinitor about 5 weeks ago the bone pain in my left hip has gone away, so Dr T and I are both hopeful that we will see a change in my tumor marker. I should know Friday. Of course she said that it could still be too soon to see a change in the number.